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Elsa Shapiro
February 16, 2017

Accelerating the Conversation: Rare Disease, The Patient Experience and What's Next

Elsa Shapiro
February 16, 2017

Elsa Shapiro and Cara O’Neill, Co-founder and Vice President of Cure Sanfilippo Foundation discuss the future of research, the need for collaboration and more.

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Newer PostThank you and Best Wishes to Kate Delaney
Older PostEMA Slide Share- Presentation Given at Consensus Conference
  • 2018
    • Mar 2, 2018 Satellite Session at the WorldSymposium, 2018 Mar 2, 2018
  • 2017
    • May 15, 2017 Consensus Papers Posted May 15, 2017
    • Apr 27, 2017 Thank you and Best Wishes to Kate Delaney Apr 27, 2017
    • Feb 16, 2017 Accelerating the Conversation: Rare Disease, The Patient Experience and What's Next Feb 16, 2017
    • Feb 10, 2017 EMA Slide Share- Presentation Given at Consensus Conference Feb 10, 2017
    • Feb 9, 2017 Video Share- Presentation from MPS Consensus Conference Workshop Feb 9, 2017
    • Jan 5, 2017 Update- A Successful Consensus Conference. Jan 5, 2017
  • 2016
    • Nov 7, 2016 Elsa Shapiro Announced as Keynote Speaker at WORLDSymposium Nov 7, 2016
    • Sep 20, 2016 Shapiro & Delaney form partnership with National MPS Society (U.S.) and UK MPS Society to organize an international consensus conference. Sep 20, 2016
    • Mar 26, 2016 Cognitive Endpoints- An interview with Dr. Elsa Shapiro, Rare Disease Report Mar 26, 2016
    • Mar 12, 2016 A Prospective Natural History Study of Mucopolysaccharidosis Type IIIA Mar 12, 2016
  • 2015
    • Dec 8, 2015 World Symposium 2016 Dec 8, 2015
    • Jul 8, 2015 Involvement Jul 8, 2015
    • May 31, 2015 Advocacy Groups May 31, 2015
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